Dad Says He’s ‘Always Had The Answers’ Until His Son’s Devastating Diagnosis Left Him Feeling Stranded And Lost
The anonymity that the internet provides often brings out people’s worst impulses, as there’s little accountability for online cruelty. Yet sometimes, communities created through virtual forums are places of hope, where someone can say how they feel and hear support echoed back to them. One father’s post online about his 15-month-old son’s rare syndrome, which has since been deleted, was a prime example of finding reassurance through online spaces. The dad felt ‘stranded and lost’ after his son’s devastating diagnosis. “I posted when he was 5 months old, 8 months old, a year old, 15 months old, and now, but this time I have his official diagnosis thanks to whole genome sequencing,” the dad began his post. “I’m shattered. I’m broken. I’m falling apart, and this is my only outlet to let that be known.” “I’m his father, and I can’t fall apart because I need to be there for my wife and two other daughters,” the dad proclaimed. He explained his son’s diagnosis of “an insanely rare syndrome where less than 400 people worldwide are …







